STEPHEN'S HOME!

We are so happy to say that our sweet Stephen is finally home!! Even though he was only in the hospital for 1 night it seemed like an eternity at home without him (says Lily Gray)

We were able to leave this morning, a miracle by hospital standards- 11am!  Thanks to Mommy pushing the doctors to get the paperwork done.  Dr. Rhinstein, the GI doc who did Stephen's surgery, says that everything look great and Stephen's incision site looks wonderful!  He seems to be in little to no pain today, thank goodness, and we were more than ready to be home.  Before we left the hospital Stephen had a very special visitor come to see him. 

Lily Gray came to the hospital armed with gifts for her sweet brother to brighten up his day! 

 Showing Stephen his card

Reading the card to Stephen.

This was Lily Gray's first time ever coming to the hospital to see her brother. She was so interested and excited to see everything and learn how everything works- she is so protective over Stephen and it warmed her heart, and ours, to see them so happy together.

Stephen was able to show Lily Gray his new feeding tube and teach her how to use it, we are happy to report that Lily Gray gave Stephen some water this afternoon in his new tube! She is such a great helper! 

 Stephen gave Lily Gray a quick tour around the children's ward before we packed up our things and headed home. 

We are so happy to be home for the weekend.  We will head back to Duke on Monday morning to start Stephen on the ketogenic diet but until then...

 Stephen says, "Good-bye DUKE!"

One last special note:

  Lily Gray wants to send a great big, giant hug to her Nan Nan for coming and spending some time in Raleigh with her. She loved having you here and can't wait for you to come back.  We love you Nan Nan! :)